Posted By Posting
Oct 06, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
5 days post redo fundo-swallowing question
My daughter just had her fundo redone this past Friday, and she surprisingly, is doing really well so far. We came home Monday night and she is still on full fluids. She is really congested which is a chronic problem for her). However, a few times I noticed what I noticed after her 1st fundo: I still hear her swallowing some liquid substance, as if she is refluxing. After the 1st fundo, I had a few doctors and a parent of a child who also had a fundo who all told me that they frequently swallow right after a fundo, but that it should diminish. The surgeon said he doesn't know if it is excess saliva produced by the body, or it could be mucus. One of the surgeons that I spoke to actually performs fundos but had one himself too. He said he would have a lot of mucus and saliva, and actually gagged some mucus up once. My question is, has anyone heard of this or had experiences with this? I realize that it could be some reflux because obviously the fundo isn't full proof, but I would hate to think that in the midst of recovering, she still refluxes even though she isn't in any pain and is mellow and happy! I cringe when I hear the swallowing though! And by the way her 1st fundo was 8 months ago; it herniated because of chronic coughing associated with this chronic congestion which we now treat with Atrovent through a nebulizer. Any input would be appreciated! Thanks, Carla
Oct 10, 2004
Susie
Post fundo
I am no expert here, but my daughter is the one who had the esophageal blockage 9/27/04 after the surgeon put her on a regular (but small) food diet two weeks after her 9/1/04 fundo. We have pretty much started her recovery all over again and she is still on liquids with a much slower, more conservative approach to her diet after the fundo. After her fundo, before the blockage when she was on a thicker/post fundo diet(which we haven't reached yet this time) throwing up all the time, she did the same thing. She was swallowing constantly, almost but not quite gagging on saliva. I was really worried that she was refluxing. She made clicking sounds too, like before the fundo. It stopped after her blockage was removed and she started on a liquid diet. I am GUESSING that since she had so much swelling, many fluids weren't squeezing down through the fundo, so that she was dealing with all the above her fundo fluids. I think once the swelling went down, it made a huge difference. I don't think it had to do with the blockage, just the swelling. She doesn't do it at all anymore. I'm glad things are otherwise going well. Hang in there. Susie
Oct 11, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
that makes sense to me
Hi Susie, Thanks for the response. It makes perfect sense to me because she has had some things stuck in her esophagus before going down. She swallows more when we know something is stuck, so it makes sense that there may be things we don't know about(that aren't so obvious from the outside) that she is trying to get down. We know she is still swollen. I am sure there is excess saliva when there is so much swelling. On another note, I don't understand why surgeons rush the whole eating process. My daughter's surgeon doesn't, but his partner that checked us out would have her on regular foods by tomorrow only 10 days after surgery!!!!! Since we have done this before, I know not to rush it and I am going at her pace, not his. Hope your daughter is doing well, I am so surprised at how well this has gone for us so far. Little bumps in the road, but nothing too dramatic, and certainly not the pain that was involved last time. I am thinking somehow that last time may not have been all pain-maybe just a frustrated baby screaming because she diddn't know any other way of communicating. She communicates now so it has made it a lot easier. Well thanks, Carla
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