Posted By Posting
Oct 27, 2004
Danny Davis
Reflux, Vocal cord paresis, NJ tube.
My 7 month old son is still in the hospital with Reflux, Vocal cord paresis "uni" , and NJ tube. Are there any parents out there that have brought their child home under these circumstances? My wife and I are trying to avoid the nissin / g-button approach. Thanks for your help. danielhdavis@yahoo.com
Oct 27, 2004
Anonymous
I have an 8 month old son who was born 14 weeks early. He, too, suffered from reflux and vocal cord problems. His left cord is paralyzed as a result of surgery (PDA ligation) when he was a few days old. He was discharged from the hospital when he was 5 months old - came home on oxygen, monitor, and with the g-tube. He had the Nissen fundoplication. I know the fundo has helped some children; however, I truly wish we had not agreed to the fundo when we did. Everyone at the hospital - a nationally renowned site for pediatrics - made it seem like the fundo was the perfect answer. NOBODY ever told us about retching he started shortly after coming home. Until a couple of weeks ago, he didn't take in anything orally; it was all by g-button. Now that we have started giving him baby foods orally, the retching and gagging is HORRIBLE. I wish we had stayed in the hospital a little longer and avoided the Nissen altogether.
Oct 28, 2004
danny
Hmmm. Sounds like I am in the same boat. His left vc is also damaged. We will never know if the vc damage was done by the pda operation or having to be intubated so many times. Now the doctors dont want him to come home because of the airway not being protected. They have started to suggest the nissen (for reflux) and g-button (for feeding) but my wife and I are not convinced. How has you experience with the g-button been? I wish there was something we could do about the vc. Feel free to email me @ danielhdavis@yahoo.com. Thanks
Oct 27, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
what is vocal cord paresis "uni"?
My daughter has had problems with her vocal cords, but I haven't heard of this term. Could you explain it?
Oct 27, 2004
ptyler
response
Paresis means weakened or limited movement. It is a term to describe nerve damage. His problem with his vocal cords may not related to his reflux but due to surgery for other complications. "uni" refers to unilateral or only one vocal cord. Take Care, Pam
Oct 27, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Pam
What kind of things would you see that indicate weakened or limited movement? In other words, what problems does it cause?
Oct 27, 2004
ptyler
response 2
Limited movement of a vocal cord would result in a weak, breathy voice as the cords would not be able to close completely together allowing air to pass through them. Acid reflux would not cause vocal cord paresis but it can cause edema or swelling/irritation of the cords which result in a hoarse/rough sounding voice. With severe acid damage ulcers on the cords can result which would leave a hoarse but breathy voice as again the cords often do not close completely when there is a mass like an ulcer on the cords. Ulcers from acid reflux usually appear on the back third of the vocal cord. Pam
Oct 27, 2004
Carla
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
Thanks
My daughter has "floppy" vocal cords, actually her whole upper airway is "floppy". She had damage to her vocal cords from reflux, but thankfully, no ulcers, and it has healed. Anyway, I was just curious. You sound like you know a lot and I always like to learn more...thanks for the info! Carla
Oct 28, 2004
Danny
anyone going home on j-tube?
Well actually since my son has severe reflux with vocal cord peresis, his away to his lungs is wide open. Hince the problem. I reflux, then aspirate into my lungs. That why the j-tube is there until the vc heals. Has any parents taking there child home on nj tube feedings? Thanks
Oct 28, 2004
Anonymous
I responded to Jtube post on the Infants board
No text!
Check with your
doctor first!