|Nov 04, 2004|
Tahlias story, 9 months old, will she still outgrow this???My daughter was diagnosed at 6 weeks, after 4 weeks of screaming, spitting, arching, refusing to eat and then eating a ton. I was and still am breastfeeding and after getting her on Prilosec things seemed a better (not great). At 2 months she stopped eating and just slept(which she never does) and rushed over to the emergency room and was admitted and later found out she tested positive for rotavirus ( 3 weeks later), they thought maybe she had an allergic reaction to Prevacid that we were trying. Things after that seemed to be ok, she had good days and bad ones, but generally ok, though never more than a 3 hour stretch of sleep at night. Anytime we had an issue (small specs of blood in her spit up, or arching) the increase of her prilosec seemed to take care of it. She had finally stopped spitting up so I thought it was getting better, but she just learned how to swallow it. After starting solids or maybe two weeks later, she started getting so much worse, waking ever 20 minutes crying, and eating well one day, then barely for a few,on and off constantly. I went to an allergist to get some answers, she tested positive to egg and soy, not to dairy although she does seem to get a rash on her cheek from dairy. I have now taken dairy, soy, egg, and all spicy irritating reflux foods out of my diet to try to help. After an upper GI a few weeks ago, we saw severe reflux (up to her larynx and then swallowed) we upped her Prilosec to 6ml 2x a day since she stopped gaining weight at 6 months 17lb 4 oz for about a month and a half. Now we have her at taking only cereal 2 to 3 times a day and breastfeeding every 3 hours ( i have to pump to keep up my supply). She will not take allimentum, I was praying that she would, but do you blame her, the stuff is horrible. She has recently had 3 good days where she went back to her 3 - 4hour stretch of sleeping, but last night all hell broke loose again. I have a cold and am taking robitussin, and had a bit of a stomach ache last night, so I am hoping that that was affecting her.
Sorry this is so long, but I just need peoples opinions who have been there. She does not spit up much anymore, maybe once every 5 or 6 days. I am so careful of what I eat.
WILL SHE STILL OUTGROW THIS? She is going to be 9 months old in 3 days. I was praying that this would be gone. What are your thoughts, idea??
|Nov 04, 2004|
Mom of 3 year old Chelsea with severe GERD, 2 fundos and hernia repairs, chronic GI pain, laryngospasms, RAD, subglottic stenosis, chronic congestion, and food allergies AND 4 month old Gavin with GERD and MSPI
TahliaI am SO sorry to say that there is no way to predict whether or not she will outgrow it. You probably already know that the odds say that she will, and that is really good! The fact that she doesn't spit it out is good for weight gain, but because you say she swallows it probably shows that it hasn't changed in any way except for the fact that she swallows it instead of spitting it out.
I don't mean to sound so discouraging, I would love to tell you what I always wanted to hear...."yes! she'll outgrow it, wait two more months!" Unfortunately, none of us can know that.
My daughter didn't outgrow it. BUT plenty of kids do. The only way to know unfortunately is to do the dreaded thing most people hate to do: wait and find out!
One thing that helped me through is to take one day at a time. Since none of us have any control over the future of our children's reflux, just looking at today, and doing what you can to help her today is really helpful for me. It keeps me from getting ahead of myself and it keeps me from having anxiety over what is or what is not to come and when it will or won't come!!!
Please know that I don't say this in a judgemental way; I say it through plenty of experience. My daughter will be 3 in March and to tell you the very least has had 2 fundos. I know the heartache that lives with you everyday knowing your child is suffering and the pain that accompanies knowing all our best efforts aren't always enough. I know the overwhelming desire for your child to be "normal"!!! When I start to cry over it, I pick myself up and say this is what it is...I can't change it right now. So, I change my attitude instead. I do the best I can and I hope for the best taking it a day at a time.
Hope I don't sound to lecture-ie....I am telling myself to not be discouraged again at the same time!!!!
Good Luck and I REALLY hope it works out for your precious little one!
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