Posted By Posting
Nov 10, 2004
Christine
Thoughts on the Vegal Nerve damage from the fundo
I know I have heard some information on this before, about the possiablities of this being damgaed when a fundo is done. I have been doing some research on this. When Jake had his Bard removed, I heard the nurse mention to the NP of the surgeon, about his passing out eposide, they said the vagues nerve. I than asked her what that menat and she said we think that is why he passed out, and they had just finished the EKG. I left it at that, but I do want to talk to the surgeon about this. My peds thinks it is a great thing to bring up to him, but any of you have any ideas what I might ask him about this? I think with the worsen of the vomting, it is sure something that should be looked at right? Even though from what I read there is not much they can do if this is the case, but I would at least have a reason why he vomiting like this.. Any thoughts??
Nov 13, 2004
Carol
Christine
Christine, When my son had his first Fundo, there were serious complications. One of the results of the complications was that his Vagues Nerve was destroyed. As a result, he has had new problems such as chronic constipation/ colon inertia. I think it is a very good idea to discuss nerve damage with the surgeon & GI doctor. I don't think the nerve can be fixed though. Let me know what you find out. Carol
Nov 13, 2004
Anonymous
Carol Thank you for your reply on this. I had emailed the surgeon and he feels that this is not what happened in Jake's cause the gastric empty scan was fine, same as the UGI. I am having such a hard getting my Drs to try to fix these issues. The surgeon seemed really stand offish about it, and just saying all this problems are due have an underlying motiltiy or as one Dr called it, a foregut dysmotility probmes. Thanks again Carol. I just so badly want all the vomiting and every now and than dierreah to go away, but mainly the vomiting.
Nov 14, 2004
Christine
nerve damage?
Christine, Glad to hear it is doubtful that your child's nerve is damaged. Because your child is still suffering,I would try and get another GI Diagnostition's opinion. We have been very impressed with Alex Flores,MD at Floating Hospital in Boston, Mass. Children come from all over the world to be evaluated by him. He is brilliant as well as kind. If your current MDs can't or won't help find the cause of your child's suffering, find someone who will! Good luck. Carol
Nov 15, 2004
Anonymous
We See him...
Carol, We are actually seeing Dr. Flores..:-) We went to him back in Sept, when everything went bad after the J-tube placement. He was really intrested in Jake, and wanted an UGI asap, we had it done, and it happen to show everything was fine that day. At first he said, " I think we should just give Jake some time" I refused and asked him why can't his fundo just be taken down. He asked me why, I said, look at my child, he than schuedule us for the Manomerty testing, but unfortuanlly we could not get an appt 12/21/04. He also told me that even if they did find something, which there isa good chance they won't, than all they can do is play around with meds. He also told me he is was going to try to move the test up asap, when I called a couple weeks later to talk with his secertary, she said he never mentioned anything to her about trying to get it moved it....The problem I thinnk I am having is our current GI and Dr FLores use to work together, so they each other very well. I am just so tossed right now, I think what I really want is to get all Jake's Drs in the same room together and have it brought to the table that none of them are on the same page. I feel like everyone is stepping back from the situation. The surgeon is the only one that has been with us since Jake had this fundo in April, and now even he is trying to put things behind him...for what reason I don't know. I just do not see how a almost 4 year old can live like this. Thanks again, I think I am going to call Dr Flores office again and see if maybe I can talk with him...let him know what is going on. I just want this fundo GONE!!! I hate it.
Dec 03, 2004
Carol
Christine
Christine, Sorry to hear that Dr. Flores has not been there for you. Have you tried speaking to him by phone? He always returns my phone calls. As for him being friends with your former GI Dr., they all know each other. There are not that many pediatric GI's around. May I ask where you live? I live in New York. Another excellent Ped. GI MD is Dr. Carlo DeLorenzo in Pittsberg,PA. Being persistant(phoning every day sometimes)has usually worked for me. Being very nice to MD's assistances and nurses usually helps to get procedure dates moved up.Hang in there. You & your family will be in my prayers. Carol
Dec 07, 2004
Christina
vagas nerve damage
I read your posting and can totally understand what you are going through. To say I've been there and done that is just the tip of the iceberg. I'm not sure where you are from, but we were able to find a fabulous physical therapist who teaches all over the country. He "worked" with Jamie and was able to do manual therapy to stimulate the vegas nerve. This allowed Jamie to regain some normal swallowing. He vomitted everything for 3-4 months.(including liquids) I was at the end of my rope and didn't know where to turn, as the doctors were less than helpful. We still see Jay 1x per week to continue to keep things going the way they should and this is better than the 3x per week we were seeing him. Jamie now eats popcorn, bugles goldfish crackers and lots more. I still chop his regular dinner and lunch but this is a miracle in my mind. Please feel free to contact me if you'd like. Christina McHugh cmc81888@aol.com
Check with your
doctor first!